This will be a quick post because I've got to get a cab in 40 minutes to get to the airport to go to San diego. Just to let you all know the meeting with Jack Rychik went really well. It was great to be able to talk to someone who knows more about PLE that anyone else in the world and talked about his passion for helping these kids. There wasn't anything I'd thought about that he hadn't also considered.
I'll write more when I'm not in a rush but the main thing is he's interested in the idea of an international convention leading to an international collaboration. He went straight from our meeting to talk to a charity about funding a specialist clinic for Fontan children. I must make sure that the UK links in to this.
Thanks for all your thoughts I feel your support. Travelling another 3 hours behind and presenting tomorrow, wish me (more) luck.
P.S. in Starbucks again. The student opposite has a T-shirt saying "What would Jean Valjean do?" I think it's a question we should all ask ourselves!
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