They're going to talk to me about their "Single Ventricle Survivorship" programme. Single ventricle relates to my son's, surgically created, two chamber heart; survivorship is not a word I've come across before but it sounds positive!
Must book hotel or I'll end up sleeping on the streets of Philadelphia.
Edited to add:
OK done that, phew.
My dad phoned to say he'd heard about the blog from Auntie in Edinburgh who had heard about it from my cousin in Vietnam!
Hi Hazel.
Isn't the web wonderful. Night All.
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